Disability · Disabled · family · Health · lifestyle · Positivity · Pots syndrome · Sheffield · Spoonie · Uncategorized

πŸ€’πŸ₯βŒβ™ΏοΈMe and my daily struggles with illness πŸ€’πŸ₯βŒβ™ΏοΈ

Hi guys,Lately I’ve been very sick 😷 and I’m currently changing medication to hopefully help me and that’s why My posts are sporadic as I do them as an when I can so please bare with me, it’s also why I haven’t been able to do any face paint for a while due to fatigue and sickness.πŸ˜˜πŸ€—

This post will be about how my illness affects me daily as postural orthostatic tachycardia syndrome (POTS) is different for everyone and that’s why it’s so hard to treat/get under control.

So to start off I have a condition called joint hyper mobility syndrome (JHMS) this affects all my joints and mainly my back and can cause me pain . I guess the only plus of JHMS is extra flexibility πŸ€”.

Not everyone with JHMS will have or get POTS syndrome but I’m one of the lucky ones πŸ˜‚πŸ™ˆ. Also this means unlike some other forms of POTS mine will not go away and I will have to deal with it long term.

I have noticed that it’s a very long process and many people being miss diagnosed due to ignorance or health care professionals, the amount of times I was told my issues were psychological I would be a millionaire trust me πŸ˜‚.

My main symptoms 

 β€’ Dizziness- this is a daily occurance even with medication, but has improved 

 β€’ Fainting- 1/2 times a week maybe more yet again medication has vastly improved as I would faint daily before.

 β€’ vomiting –  I find this to be my worst symptom as I am sick usually daily and it’s caused me to have chronic gastritis and eroded my teeth. I am on two different anti sickness tablets but will talk about them later.

 β€’ Fatigue- this is an on and off thing I can be bursting full of energy one minute and the next I can’t lift my head off a pillow. This is why it’s difficult to make plans as I hate letting people down.

 β€’ Bowel issues πŸ™ˆ to be polite it’s all or nothing basically

 β€’ Brain fog/talking gibberish- i go to another planet and it feels great but I sound and look like an idiot to those around me and I can’t hear them very well

 β€’ Mood issues- i have crazy mood swings and I’m blessed with a fiancΓ© that puts up with my weird ass self 

My medications I’m on daily

 β€’ Sertaline depression 

 β€’ Co codamol pain 

 β€’ Proclorperazine anti sickness 

 β€’ Ondansatron anti sickness 

 β€’ Propanol beta blocker anti dizziness 

 β€’ Doxycycline for hormone imbalance/acne

 β€’ Fludrocortisone steroid anti dizziness 

 β€’ Lanzoprazole to protect my stomach 

I also have to take my own laxatives and anti constipation medication to regulate myself. I also take vitamin drinks daily to help replace some of what I lose through sickness.

Anyways if you have any further questions just ask me I’m an open book πŸ€—

Do any of you have pots?

Do you have similar symptoms?

Much love,

Beth xoxo


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